CHD Parent Resources


Our Resources for CHD Parents 

Created by Tom & Kat Hansen

Did You Know? Congenital Heart Disease is the most common birth defect worldwide. 1 in every 100 children are born with CHD every year in the United States alone. To give some perspective on just how common this disease is, other childhood birth defects and diseases such as Down Syndrome affect 1 in 800, Cystic Fibrosis affects 1 in 3,000, and cancer affects 1 in 6,250 children. According to the CDC, there are an estimated 40,000 children born with CHD every year in the United States. 

Our Book "Hope and Courage: Six Life Lessons from the Parents of a Child with Congenital Heart Disease"

CHD Parent Profile Assessment

What to Bring to the Hospital for After Your CHD Baby is Born

Top Ten Tips

for

CHD Parents

Emergency

Card

Template

Medical Finances

Organizational

Aid

Questions to Ask Your CHD Child's Cardiologist

What to Look for in a Pediatric Heart Surgeon

More Valuable Resources Below!

Below you will find a list of links to non-profits, programs, websites, books, and other products & tools we recommend for CHD parents.

Article

Apps

Books


Magazine


Newsletter


Podcasts & Radio Shows

Movies

Non-Profits for CHD Fammily Support


CHD Books/Gifts/Gear

CHD Research Organizations

Helpful CHD Gear