CHD Parent Resources
Our Resources for CHD Parents
Created by Tom & Kat Hansen
Did You Know? Congenital Heart Disease is the most common birth defect worldwide. 1 in every 100 children are born with CHD every year in the United States alone. To give some perspective on just how common this disease is, other childhood birth defects and diseases such as Down Syndrome affect 1 in 800, Cystic Fibrosis affects 1 in 3,000, and cancer affects 1 in 6,250 children. According to the CDC, there are an estimated 40,000 children born with CHD every year in the United States.
More Valuable Resources Below!
Below you will find a list of links to non-profits, programs, websites, books, and other products & tools we recommend for CHD parents.
CHD Research Organizations
National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) - A network of over 60 pediatric cardiology care centers across the US, Canada, and the UK who work together with families, clinicians, researchers, and patients to dramatically improve the outcomes for children with cardiovascular disease.
Conquering CHD - A organization who exists to conquer the most common birth defect (CHD). They engage, listen, learn, and act. They create visibility and empower all impacted by CHD. They accomplish this through awareness, knowledge, community, and research.
Helpful CHD Gear